Episode 1: What You Need to Know About NETs
Understanding the Basics of a Neuroendocrine Tumor (NET) Diagnosis Tune into this episode of NETWise as we define and explain how neuroendocrine cells become neuroendocrine tumors (NETs). We take a...
View ArticleEpisode 2: Imaging, Testing, and Building a Care Team
Detecting and Monitoring NETsLearn about important neuroendocrine tumor diagnostic tests including Gallium 68, Ki-67, and 5-HIAA. Listen as NETWise takes you on a journey to diagnose neuroendocrine...
View ArticleEpisode 3: Surgery and Interventional Radiology for NETs
Direct NET TreatmentsIn this episode of NETWise, we discuss two common treatments for neuroendocrine tumors. Treatment, like surgery and interventional radiology, can reduce the number and size of...
View ArticleEpisode 4: Nuclear Medicine for NETs: What is PRRT?
Treating NETs with Nuclear Medicine This episode of NETRF’s NETWise podcast discusses Peptide Receptor Radionuclide Therapy (PRRT) a targeted form of radiotherapy approved in the U.S. in 2018. Listen...
View ArticleSpecial Episode: COVID-19 and NETs – What You Need to Know
In this special episode of NETWise, listen as we talk about COVID-19. As a NET patient, you may have additional risk for serious illness from COVID-19, so we share some tips for avoiding infection,...
View ArticleEpisode 5: Medical Management of NETs
Understanding SSAs, Chemotherapy, and Targeted TherapyWhat treatments do oncologists use to slow or stop neuroendocrine tumor growth? What role do newer approaches like targeted therapy or...
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Episode 6: Managing Symptoms of NETs
Functional and Non-Functional NETs This episode is about managing the symptoms of functional NETs. To understand these symptoms, we start by talking about hormones. What role do hormones play in the...
View ArticleSpecial Episode: COVID-19 and the Rise of Telemedicine
Using Virtual Appointments to Care for NET PatientsIn this special episode of NETWise, we learn how COVID-19 is forcing our health care systems to make sweeping operational changes. Amid lockdown and...
View ArticleEpisode 7: Clinical Trials
New Ways to Detect and Treat NETs What are clinical trials? In this episode of NETWise, discover how new ideas in NET detection and treatment are moving from the laboratory to the bedside. You’ll...
View ArticleSpecial Episode: Lung NETs
Did you know that about 1 in 4 NETs develop in the lungs?Lung NETs are often overlooked, less frequently discussed, and more misunderstood than NETs that begin in the pancreas or GI tract. It can be...
View ArticleEpisode 10: Pancreatic NETs
Did you know that there are more treatments for pancreatic NETs (PNETs) than for other types of NETs? While there are more options, treatment for PNETs needs to be individualized since these tumors...
View ArticleEpisode 11: AYA (Adolescents and Young Adults) and NETs
Unique challenges for young people with NETs Facing a diagnosis of neuroendocrine cancer, when you are a teenager or young adult, presents unique medical, social, financial, and even fertility...
View ArticleEpisode 12: The Importance of Caregivers
Caregivers Share the Burden of a NET Diagnosis A diagnosis of neuroendocrine cancer impacts the person who receives the diagnosis, as well as those they love. A spouse, child, or friend may take on...
View ArticleEpisode 13: NETs and Genetic Screening
Understanding the Relationship Between NETs and Genetics What role do genetics play in neuroendocrine tumors (NETs)? Is genetic screening right for you? Should you have your family members screened...
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Episode 14: Pheos and Paras — NETs Known as “the Great Mimic”
Pheochromocytomas and paragangliomas are rare neuroendocrine tumors that occur inside or outside the adrenal glands. Affecting approximately 1 in 3,000 people, pheochromocytomas and paragangliomas are...
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Episode 15: Supportive Care for the Mind, Body, and Soul
When you’re fighting cancer, treating your tumors is only part of the care you need to continue living your best life. Caring for you as a person – mind, body, and spirit – is the focus of a dedicated...
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Episode 16: NETs and Nutrition
They say “you are what you eat”, and that can be a real challenge for people with neuroendocrine tumors. In this episode of NETWise, we’re going to look at all the ways that NETs interact with...
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Episode 17: Focus on Liver NETs
The liver is very often the first and most significant site of neuroendocrine tumor metastasis and for many people, managing the disease in the liver is the most challenging part of their NET journey....
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Episode 18: High-Grade NETs and NECs
While most neuroendocrine tumors are low-grade and slow growing, there are some that are high-grade and very aggressive. These high-grade NETs are treated very differently. In the newest episode of...
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Episode 19: NET Research—Part One
Episode 19 is the first of two episodes that will discuss a topic near and dear to us here at NETRF: NET research. Advancing NET research is the core of our mission, and it’s a crucial need, because...
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Episode 20: NET Research—Part Two
Episode 20 is part two of our deeper understanding into NET research. Advancing NET research is the core of our mission at NETRF, and it’s a crucial need. This episode of NETWise will take a closer...
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Episode 21: Adjusting to the New Normal
A NET cancer diagnosis can affect the emotional health of patients, families, and caregivers. In this episode, we’re going to do something a little different. We have spent a lot of time in this...
View ArticleNETs 101: En Español: Lo que necesitas saber
https://netrf.org/wp-content/uploads/2022/11/NETWise-en-Espanol-Ep1-Ready2-1.mp3 https://netrf.org/wp-content/uploads/2022/11/compressed-NETWise-en-Espaol-Ep1-Ready3-WIT.mp3 The post NETs 101: En...
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Episode 22: Navigating The New Normal
In the last episode of NETWise, we talked about a moment of transition – the time right after someone receives a diagnosis of NETs and the feelings of grief that can follow. This episode discusses the...
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Episode 23: Parenting with NETs
As we end our mini-series about adjusting to the new normal of your life with NETs, we wanted to take an episode to highlight one of the most emotionally challenging situations that might confront a...
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Episode 24: Gynecologic NETs
This episode of NETWise expands our series looking at all possible NET primary sites, with a conversation about one of the very rarest forms of NETs – those that originate in the female reproductive...
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NETWise Episode 25: Small Bowel NETs
This is a revised version of an episode that first aired in December of 2020, where we focused on diagnosis and treatment of NETs that start in the most common site: the small intestine.A special...
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NETWise Episode 26: LungNETs – Updated Episode
This is an updated NETWise episode. A special thank you to Dr. Aman Chauhan for his expert knowledge and help with this special NETWise update.Did you know that about 1 in 4 NETs develop in the...
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NETWise Episode 27: NETs & Race
We hear a lot about the need for diversity and inclusion in health care, and we know there is a need for more diversity in NET clinical trials. In looking at the issue of race and medicine there are...
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NETWise Episode 28: PRRT Revisited
In this episode, we’re talking in depth about one of the most exciting and widely discussed treatments for NETs: PRRT.This is a revised version of an episode that originally released in 2020. A lot...
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NETWise Episode 29: Merkel Cell Carcinoma
One of the things that sets neuroendocrine tumors apart from other kinds of cancer is that they can occur almost anywhere in the body. Those different locations — or primary sites — can mean the NET...
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NETWise Episode 30: Understanding Fatigue & NETs
If you’re dealing with NETs, you likely have encountered fatigue in various forms. The spectrum of fatigue spans from temporary and inconvenient to persistent and debilitating. It can be a source of...
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NETWise Episode 31: 2023 Year in Review
Research is at the very core of what we do at NETRF. We believe it is the key to discovering cures and more effective treatments for neuroendocrine cancers. In this episode of NETWise, we share some...
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NETWise Episode 32: Pheos & Paras (updated episode)
Some of the rarest, most complex, and difficult NETs are known as pheochromocytomas and paragangliomas. This is an updated version of an episode that first aired in 2021. A special thank you to Dr....
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NETWise Episode 33: The Power of Knowing: Mortality & End of Life
When one is diagnosed with an illness, like NETs, mortality can come to the forefront. Even if your NET journey presents a trajectory of being chronic and is stable, it is not uncommon to have...
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NETWise Episode 34: Young Adults Living with NETs: Updated Episode
In this episode of NETWise, we talk about the experiences of young people living with NETs. This is an update to an episode that was originally published in 2020. A special thank you to Dr. Aman...
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NETWise Episode 35: Histotripsy
In the past few months, there’s been a lot of buzz in the NET community about histotripsy. This newly-approved procedure holds a lot of promise for treating NETs, and may prove to be even more...
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NETWise Episode 37: Uncommon Neuroendocrine Neoplasms (NENs)
Neuroendocrine neoplasms (NENs) can arise in many locations throughout the body; they can grow rapidly; and they can occur under unique circumstances. In this episode of NETWise, we talk through some...
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NETWise Episode 38: Rural Care
Whether or not a patient has access to care is one of the most important factors in how their cancer journey plays out. It is crucial for timely diagnosis and effective treatment of neuroendocrine...
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NETWise Episode 39: What Could Immunotherapy Mean for NENs?
Lately, there’s been a lot of talk about immunotherapy, which has transformed treatment for patients with some kinds of cancer. So far, patients with NETs and NECs have largely been excluded from...
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